Every integrated care system in England has a shared care record in place, but there is a lot of work to be done to ensure they deliver on their potential. Watch the video to hear from NHS leaders and Orion Health experts on what this might look like, including broadening the datasets, bringing in patient-contributed data, national data sharing, and more.

What’s next for shared care records?

Mark Hindle, Orion Health: What I think is next for shared care records is that a longitudinal patient record is becoming the norm around the world, particularly here in the UK and Ireland, regarding how we do health and care.  So, I want to see a rich data set, I want to see data from primary care, secondary care, tertiary care. I want to see Care Home data, Community, Pharmacy, Dentistry, Patient contributed data and data around the person; so, the life lifestyle data from their wearables or the pollution levels where they live the amount of sunlight they get from their phone.  

Ben Wilson, Orion Health: We’re now at the point where every Integrated Care System (ICS) in England, every of the 42 ICS’s has a shared care record in place. There was a set of requirements which were based around a minimal viable solution, which set a bar around having basic connectivity, a basic data set. So what we’re trying to do in Orion Health is to look at individuals who are accessing the shared care record and tailor the experience to the individual. So, a lot of the new functionality we’re developing in our Amadeus Digital Care Record is really around personalisation features and filtering and being able to go from condensed views to more detailed views and making it really easy for the health and care professional using the system to get to the data that they actually need.   

Rob Nimmo, Cambridgeshire and Peterborough ICS: It’s increasingly important that we share data across not only Integrated Care Systems but regionally and nationally. One of the key challenges is to make sure that locally we can do that in Cambridgeshire and Peterborough in order to share data nationally.   

Sarah Pearl, NHS England: So, one of NHS England’s drives is to make our systems more interoperable. As part of that, we’re starting a project with the National Record locator services. This will enable one of our products to connect to the share care record program, enabling the front lines to get immediate access in the case of emergency care. 

Mark Hindle, Orion Health: I think we need to accelerate the conversation on the data set that’s available and then sharing that as widely as we can, like we have done for shared care records with thousands of professionals using them every day to help the care of people around the country. Making the data set richer is really going to help us to make more of a difference at a faster pace.  

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Where next for the shared care record (or the connected care record)?

A lot has happened in the shared care records space over the past couple of years. NHS England made the deployment of SCRs a focus of its plans to recover health services after the COVID-19 pandemic, building on the success of the local health and care record exemplar programme. But what’s next?

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